tag:blogger.com,1999:blog-7368056645691128384.post5439283649761720850..comments2023-05-17T13:15:50.282+01:00Comments on Only Resting: Where Dreams Go To DieBarry Fotheringhamhttp://www.blogger.com/profile/16158013718479616955noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-7368056645691128384.post-23281087461836527372011-06-09T01:35:51.707+01:002011-06-09T01:35:51.707+01:00Hi Barry
This is a very courageous blog you'v...Hi Barry<br /><br />This is a very courageous blog you've been writing. In some ways you have possibly been too open about things. You don't owe the world an explanation for anything! You wanted to help people in a similar situation to you. Well i've got news for you. You have helped. <br /><br />It is easier to cope when you know others have had similar experiences, thoughts and fears. I must admit i thought you should not try to collate all the info for people as i reckoned you'd be better off focusing on your own health. The people who i've heard of, that make significant improvement do so within a couple of years of being ill and usually have accepted the limitations of this illness. Personally, i pushed myself too hard and too often, as soon as the slightest improvement in symptoms appeared. Also, i have taken a lot longer to deal with (or even contemplate) some of the issues you have been talking about recently. I think you're doing alright but you should go easy on yourself. Don't give up your hopes and dreams but please don't hurt yourself trying to achieve them too soon.<br /><br />Best regards<br />ps sorry to hear that your realationship ended.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7368056645691128384.post-48606301471364556592011-06-06T02:47:29.848+01:002011-06-06T02:47:29.848+01:00It's amazing to me what a quick learner you ar...It's amazing to me what a quick learner you are Barry. Those of us who fell ill in the '80's believed the false rhetoric that we just had to learn to adjust and that most PWC's got better. Consequently, we hopped on that merry go round trying all manner of things and blamed ourselves for our own lack of progress. Your insight has value to many on their own journeys and I always enjoy what you have to say.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7368056645691128384.post-29217284411982808912011-06-06T00:02:48.016+01:002011-06-06T00:02:48.016+01:00It's interesting that many of you 'newly d...It's interesting that many of you 'newly diagnosed' (in the last few years) have taken this approach. I at the start, literally slept for two years. When I was awake for the six hours, it was like being blind drunk and being woken up from a deep sleep and you can't remember anything. So for me, this instinct didn't come until much later.<br /><br />I truly believe the only way to achieve anything for us, is either painfully slowly, or collectively. You should speak to Lee Lee, he has a brilliant idea about a website with source information, that all of us could contribute to. Perhaps with us all doing a little we can achieve both of your goals?<br /><br />Never be hard on yourself that the ever-changing emotions, reactions and situations that CFS/ME as a catalyst for, causes in you. It is like being on a expedited course of learning about yourself, there is no escape from it, so we grow quickly under the weight of all the challenges. <br /><br />This life is extraordinarily hard, you needn't be hard on yourself too. <br /><br />xox<br /><br />After my blog post, and reading your comment, I wonder if some of those traits are a result of our childhood experience? I am the same, I am a perfectionist. My sister was going to start a charity for us, but she ran out of steam... but she had asked me to ask others what they needed/wanted. It mortifies me still that I got their hopes up and couldn't deliver.Marzihttps://www.blogger.com/profile/06397550642253454658noreply@blogger.comtag:blogger.com,1999:blog-7368056645691128384.post-83026011904814149562011-06-05T21:38:24.926+01:002011-06-05T21:38:24.926+01:00your ability to develop so rapidly is amazing! wha...your ability to develop so rapidly is amazing! what a wonderful post which i am certain will help many newly dx'd. i certainly fell into the same idea of 'i will find the answer' that you did, but your openness and honestly is a gift to many who shall-sadly-come after.<br />i am honored to be able to watch you continue to grow and challenge yourself. i am thanking the powers that be that you are focused on the more 'philosophical approach.'<br />much love braveheart!!! xx~Elisehttps://www.blogger.com/profile/03467607357435049939noreply@blogger.comtag:blogger.com,1999:blog-7368056645691128384.post-61880562747235317432011-06-05T21:27:41.802+01:002011-06-05T21:27:41.802+01:00Very well said Barry! We are both in pretty much t...Very well said Barry! We are both in pretty much the same place in many ways. The reality is we do have to "accept 'what is' without giving up hope for the future." Soooo true. Just hard to wrap my head around, yet I know that is HAS to be done! I was going to take down Metlife, change the ERISA laws, cure myself, deliver a comprehensive treatment/approach plan (via Dr. Lapp) to family practice and internal medicine docs & be an advocate for others who are being treated so unjustly. LOL....always an optimist with a warrior princess attitude. I'm still going to do something that makes a difference. I'm just not sure what, how or when it will happen. I'm coming to realize that if I don't take care of myself, there will be no hope at all to help anyone else. I still seem to have selective memory on too many days!Lizahttp://www.facebook.com/liza.hooknoreply@blogger.com